Cloud 9 – at least for now

As the title indicates, we didn’t get any bad news from the PET scan. I am reluctant to use the word “good news’, but we definitely got the best news we have had since my liver resection!

I don’t have the report so my science might be a little off in describing what is going on. So lets get to it!

There is no cancer at my initial colon resection site!!! In fact they couldn’t see anything there, let alone a tumour.

All liver lesions and lymphnodes have either shown a complete or partial metabolic response. Meaning that there is less to no cancer activity from my lesions/lymphnodes in comparing it to my PET scan back in October. The doctor told me that for some spots they can still see where the tumour is, but there is no activity there. This could either mean the tumour is dormant or dead. They don’t actually know. (The metabolic activity comes from the tumours taking up the radioactive sugar coursing through my blood. That is how the PET scan works)

So outside of hearing “your cancer free” I don’t think there could be more positive news than what we just got. I will tell you it feels really good to take a deep breath, even if this is just temporary. Going to celebrate tonight with some Chinese food and a beer!

As far my physical well being, I did decide to take an extra week off chemo. I have been pretty tired and burnt out and I just feel like my body needs a little extra rest. I have multiple sores in my nose that bleed. Not dripping or anything, but there is always blood when I blow it. Its not serious as this is a side effect of the Bevacizumab, but still a little unsettling. My hand/feet tingling and numbness has also been a little more intense and my intestines have just all over felt off and tender. On the pain side, this has come down a lot. It is no where near what it has been. During the day I can barely notice it (if I am engaged in something) and in the evening it tends to only be a little more prominent. But it is nice to know that most of it is caused by chemo and not cancer growth. Why do I think the pain is less? Two reasons – one, this chemo isn’t as toxic as the last one and so I think I have healed a little more from that. And second, the tumours have all shrunk and putting less pressure on my liver capsule and surrounding nerves. (the liver itself has no nerves)

So, next chemo is scheduled for April 24th. I have 2 weeks off before that and not only do I get to feel physically good, but now mentally as well. Easily the most relaxed I have been since that shitty scan back in October. Decided today to fly to Phoenix to meet Renee’s mom and dad and I am not going to think about cancer for 9 days. Boo.Yah.

On another note, there is now some more talk about stereotactic body radiation therapy. This is a newer technology that delivers more precise radiation to tumours. In the past, radiation to the liver has been challenging because the standard radiation would damage too much surrounding tissue. The standard radiation wasn’t as intense of a beam as stereotactic, so not as effective either. Anyway, we will cross that bridge after I speak with the radio oncologist and update everyone more then. But this could be a very exciting door that could open for me. You can read more about it with this link. Stereotactic Body Radiation Therapy

Sending out a cheers to everyone on this special day. We needed this.

Dan

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Take that cancer! Thanks Batman.
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About Dan

I am an average guy battling a not so average disease called Stage 4 Colon Cancer. I was born in 1974 in Richmond, BC and moved to Calgary, AB in 1986 - where I still reside. I started this blog in November of 2013. So I have some catching up to do. I write this for my many wonderful family members and friends who have supported me throughout my life. But, appreciation beyond words goes to my wife, my mom, my dad and my sister. You are my sole. Most importantly this is for my daughter. My little rumplebum. To share in parts of my life's journey once you are old enough and to remember our time together. I love all of you, Dan

11 thoughts on “Cloud 9 – at least for now

  1. Hi Dan, just read your Blog and can’t stop smiling! Have a wonderful break in Phoenix and look forward to the next good news. Love you and prayers are with you always, Eileen Sallis

  2. About all I can say is WOW!!! You and the family shall enjoy the moment and enjoy Phoenix…Herb

  3. Dan – you completely made my day! This is brilliant news! I am imagining you eating Chinese food and savouring that beer at the moment. Enjoy! You and your family are completely wrapped in my heart!

  4. Yes! Yes! Yes! I’m so glad Dan!!! I was waiting for hearing such a good and important news since November, after a fundraiser.. I cannot imagine how tough it was for you to pass that way until this last scan, which brings you good news. And I’m so happy for you and your family, and even for myself;)) because you gave an opportunity to leave a positive comment)). So enjoy your time in Phoenix!

  5. The greatest news for you and all your families on both sides and also your friends. This is a good report for everyone but especially for you, Renee and Audrey. We are so happy for you. Enjoy your trip to Phoenix with Rollie and Donna and relax.

  6. Awesome news Dan!! So happy for you guys, enjoy the sunshine and rest that body for your next batch of cancer ass kicking! Way to stay strong, you are amazing.

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